Tag Archives: myalgic encephalomyelitis

Rhodiola and vitamin B worked well for me – an unintended experiment

I read Rhodiola helps with fatigue and boosts energy so I specifically bought multi Vitamin B supplements with Rhodiola and took them without any immediate noticeable improvement or problem. I chose Rhodiola because: Rhodiola is … said to fight fatigue , enhance mental … Continue reading

Posted in Advice, Treatments | Tagged , , , , , , , , , , , | Leave a comment

Colonic hydrotherapy for constipation with ME

You might not want to read this, I’m not sure I even wanted to write this! Please don’t write me off as a nutbag for even mentioning it. Firstly, there is no scientific evidence for colonic hydrotherapy. (Not that scientific … Continue reading

Posted in Advice, Treatments | Tagged , , , , , , , , , , | 1 Comment

Tracking your symptoms with apps or on paper?

Do you track your symptoms and activity? I used to but fell out of the habit once I stopped improving and started sliding backwards in my recovery because it was, quite frankly, dispiriting to see I wasn’t doing as well … Continue reading

Posted in Advice, Life with myalgic encephalomyelitis | Tagged , , , , , , , , , , , , , , , , , , , | 2 Comments

Hyperbaric oxygen chamber

Last week I spent an hour in the hyperbaric oxygen chamber after a massage, as I read that it helped with some of the symptoms of myalgic encephalomyelitis (ME). I also mentioned it to my doctor to check it was … Continue reading

Posted in Life with myalgic encephalomyelitis | Tagged , , , , , , , , | 2 Comments

Nap mats

This morning I was looking for an organic cotton blanket for yoga (any suggestions?) when the internet showed me organic cotton nap mats instead. What a revelation! I never knew such things existed. If you didn’t either, let me tell … Continue reading

Posted in Wants and desires | Tagged , , , , , , , | Leave a comment

Finding answers and asking questions

Firstly, I would never seek to diminish anyone’s experiences of illness. Things are bad enough for us as it is. Some of us are motivated in different ways. Megan at My Chronic Life Journey is passionate about increasing understanding and … Continue reading

Posted in Life with myalgic encephalomyelitis | Tagged , , , , , , , , , , , , , , | 8 Comments

ME vs. CFS – They’re Not The Same!

Originally posted on Documenting M.E.:
Heads up, folks! This is probably the most important post I will ever write. It’s certainly one I feel very passionate about. It’s also a bit daunting, because I really want to get it…

Posted in Life with myalgic encephalomyelitis, Uncategorized | Tagged , , , , , , , , , | Leave a comment

Pyjamas as clothes or clothes as pyjamas

At the moment I’m finding I wear one t-shirt for 24 hours, changing when I have a shower at about 4 or 5pm most days. By then, it is too late in the day to think about getting dressed in … Continue reading

Posted in Life with myalgic encephalomyelitis | Tagged , , , , , , , , , , , | 3 Comments

The pool

This evening the water in the pool was warm and the late rays of sunshine were slanting in, sparkling with invitation. I loved my swim tonight. Well, maybe ‘swim’ is overstating it, in the pool I float around, stretch out … Continue reading

Posted in Feel good, Life with myalgic encephalomyelitis | Tagged , , , , , , , | 3 Comments

Myalgic encephalomyelitis and going to the hairdresser

Going anywhere with myalgic encephalomyelitis is a challenge but going to the hairdresser seems to be a big challenge for me. When I first improved a little, I thought getting my hair cut was a good idea, ‘looking better, feeling better’ … Continue reading

Posted in Advice, Life with myalgic encephalomyelitis | Tagged , , , , , | 5 Comments