Category Archives: Life with myalgic encephalomyelitis

National Centre for Neuroimmunology and Emerging Diseases, Griffith University, Qld

The National Centre for Neuroimmunology and Emerging Diseases (NCNED) is a new research centre and clinic based at Griffith University, in south east Queenland, Australia. You can read more about NCNED on their website. I have made an appointment at the … Continue reading

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Finding a new doctor, or sticking with your current doctor?

Does your doctor understand myalgic encephalomyelitis, or post-viral chronic fatigue syndrome? Have they helped you address the symptoms with treatments? Referred you to specialists to investigate abnormalities? Taken you seriously and helped you manage, or even improve? These are the … Continue reading

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Working vs not working with ME (or the time I lost my job)

Work is important to me and there are so many things I enjoy about working but it isn’t easy with illness. At first, my workplace was sympathetic, holding my job for me and letting me take leave without pay when my … Continue reading

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Tracking your symptoms with apps or on paper?

Do you track your symptoms and activity? I used to but fell out of the habit once I stopped improving and started sliding backwards in my recovery because it was, quite frankly, dispiriting to see I wasn’t doing as well … Continue reading

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Dr Chia’s Equilibrant

Two weeks ago I started takingDr Chia’s Equilibrant.  I read that it can sometimes cause a flare-up of symptoms so I didn’t want to take it while I was increasing (or trying to maintain) my hours at work. Silly, I know, … Continue reading

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It has been a while, how are you?

Four months since you have heard from me, mostly because I haven’t been well. For around the last six months, I seem to have been sliding backwards.  I was getting better, very slowly, between around 5 months and 2 years … Continue reading

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Kinesiology

Yesterday I had a kinesiology session for the first time. I tried it, in part because I was offered a free session from someone in training and in part because I’m keen to try anything that might help my myalgic … Continue reading

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