Employment and chronic fatigue syndrome aren’t two easy friends. They don’t like each other. The pain and fog make work hard to do, the fatigue makes it hard to be there.
Friday night is here, the end of the week where I haven’t managed to work the meagre (compared to how many hours I used to work) number of hours my doctor has said I can work. I’m too tired to be up and contemplated bringing my work laptop to bed and trying to get some more done. Looking at the laptop, I considered what I would say to someone else planning the same thing. “There is nothing urgent that needs to be done, rest now and try tomorrow or next week,” is what I’d say. So I took my own advice. Good advice as what I’d get done would probably need to be re-done later as I doubt it would be very good!
It is hard to to know when to stay and work and when to go and rest. Sometimes I know I’m procrastinating, I actually like that because I’m well enough to do something interesting with my procrastination, like cook or do something in the garden, then I come back to work. It is harder when I’m not feeling great and I don’t know if I should push a little or just go and lie down. Mostly lying down wins and it is the right thing to do, I come back fresher later or it gets worse I know I was right to stop when I did.
I know I’m lucky to have a job where I can work from home and do the hours whenever I can. But it is a balancing act and I still struggle with it.
How do you decide how much to do? The same thing probably applies to sewing projects or gardening or looking after other people, not just to work. Any advice appreciated!