I’ve just returned from staying with a dear old friend. They know about myalgic encephalomyelitis so they were very understanding and I really appreciated their kindness. Going to bed at 7.30pm and needing morning and afternoon naps isn’t most people’s idea of good company.
I was well-rested and all packed for the the trip, taking my own advice from my last post about travelling, there are just a few more minor things that I’ll think about before my next trip.
I didn’t request a wheelchair as I’m ok to walk around the terminal but the plane unloaded us onto the tarmac – no aerobridge – so there was walking down the stairs off the plane, across the windy tarmac, then up the stairs into the airport. I was so slow but I made it. Next time, I’ll think about it.
When we arrived, my friend kindly took my grocery shopping so we could pick up things I could eat (I’m gluten and dairy free). You know how I feel about shopping but a girl has gotta eat. That is valuable holiday energy I’m spending! Next time, I’ll send my friend a list before I go so they can go shopping without me. Sounds presumptuous but either that or shop online and get it delivered to their house!
I wish I’d packed a water filter, a Brita filter jug or something similar. I’m used to drinking filtered water at home and the water up there had a bit of a taste to it so I didn’t drink as much as I should have and you know how much water you need to drink with myalgic encephalomyelitis. A lot (well, I do).
I’m glad I stayed behind one day and rested, it meant I had good days for the rest of the trip. I’m glad I packed clothes suitable for yoga, I did yoga in the late afternoon sun by the water and it was fantastic.
I also packed too many books, so maybe I’ll talk to Santa about an e-reader…